All children born on or after January 1, 2001 with a positive NBHS and a diagnosis of permanent hearing loss, and all children born on or after January 1, 1998 with a negative NBHS and a diagnosis of permanent hearing loss made before their third birthday will be invited to participate in this project. Participation in the study is voluntary, and informed consent will be obtained. There is no cost to families for participation in the study.
For families who choose to participate, their child will be:
- evaluated and counseled by a medical geneticist and genetic counselor.
- offered genetic testing
The following are materials about the study. Click on the title to download the document in pdf format.
Health Care Providers Fact Sheet
The information provided in this material (e.g., fact sheet, monograph, bibliography, reference list, slide show, presentation, etc.) was supported by Cooperative Agreement Number (see below) from the Centers for Disease Control and Prevention (CDC). The contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC.
Hawai`i and Utah