This project seeks to improve the health and well being of Alaska, California, Guam, Hawai`i, Idaho, Nevada, Oregon and Washington children with conditions detected by the newborn screening blood test, congenital malformations, and other genetic disorders, by taking a regional approach to coordinating and improving access to services. We have planned activities with the following goals:
Goal A: Establish and maintain the infrastructure needed to support the Western States Regional Genetic Services Collaborative activities.
Goal B: Refine, pilot, and evaluate a regional practice model that improves access to specialty genetic services, comprehensive primary care, and care coordination for children with heritable conditions living far away from comprehensive genetics and metabolic centers.
Goal C: Increase the capacity of the collaborating states' and territory's public health agencies to perform their genetics-related assessment, policy development, and assurance functions.
For more information about this project and our activities, please go to www.westernstatesgenetics.org