Hawai‘i State Department of Health

PROJECTS

The Genetics Program administers and participates in local, regional, and national projects. For further information about each of our past and current projects, please click on the name of the project below

	Western States Genetic Services Collaborative Project This is a HRSA funded multi-state project that seeks to coordinate and increase access to genetic services among the participating states and territory. The participating states and territory are: Alaska, California, Guam, Hawai`i, Idaho, Nevada, Oregon, and Washington. Click here for more information
	Sickle Cell Disease Project This project seeks to develop a follow-up and education program to ensure that newborns and families with sickle cell disease or trait receive comprehensive care.
	Newborn Screening: Financial, Ethical, Legal, and Social Issues Project (NBS FELSI) This is a HRSA multi-state collaborative project, led by the Hawai`i Department of Health, to identify parental attitudes after receiving false positive newborn screening results. This information will be utilized to develop strategies and materials for future parents receiving false positive newborn screening results. The materials will be disseminated to state collaborators and nation-wide to newborn screening programs.
	Etiology of Hearing Loss Project This is a CDC multi-state collaborative project to (1) determine the etiology of congenital hearing loss based on children identified through statewide Newborn Hearing Screening (NBHS) programs; (2) perform a genetic evaluation of children with unilateral or bilateral hearing loss; and (3) establish a model for improving follow-up genetic services for infants with hearing loss identified through statewide NBHS programs.
	Hawai`i Genetics Awareness, Implementation, and Data Project This is a HRSA project to develop activities to increase statewide genetic awareness in all communities, implement genetics into public health programs, and integrate the state newborn screening data systems.
	Expanded Newborn Screening Using Tandem Mass Spectrometry: Financial, Ethical, Legal and Social Issues Project This is a HRSA multi-state collaborative project, led by the Hawai`i Department of Health, to obtain research data, identify strategies and develop materials for addressing the financial, ethical, legal and social issues (FELSI) surrounding the use of MS/MS for neonatal metabolic screening of culturally and ethnically diverse populations.
	Genetics Assessment and Planning Project This project updates and expands our 1993 state genetics plan by including community-based needs assessments.
Please note: Some of the information in the project pages contains links to information in PDF files. You will need the free Adobe Acrobat Reader (available at www.adobe.com) to read the PDF file.